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And I always felt like I had to convince doctors that my issues were real. In that time I saw 60-70 different doctors, got tested for a ton of stuff (can we say the majority of these were intrusive and uncomfortable, if not downright painful) and had more drugs thrown at me than you can shake a stick at.

I did get a diagnosis after biopsies were done and got cut loose.

I was unable to walk, stand, lie down or stand without agonizing pain. I forced myself to keep moving so my muscles would not atrophy as my buttocks and muscles wasted. This was my first run in with a medical person who had this opinion toward celiac, and I have huge compassion for those who have to deal with attitudes like this all the time. The GI doctor told me that I was stressed and need to “lie on the floor and listen to music”.

Right before my diagnosis, I was having major bladder pain.

I was diagnosed with interstitial cystitis but only by the questionnaire, not by a chemical test.

In 2007, after a year of constant stomach pain and losing 15 pounds on an already pretty slim fit, I finally listened to Mrs. I went to a homeopath; she took me off gluten without a screen. I just lay there staring at the ceiling because I couldn’t read anymore. Finally someone ran a blood test and bingo – a biopsy a few months later confirmed it.

He had blood drawn and called me and told me everything was fine…wrong. My body was rejecting all food, I was losing a lb a day, I couldn’t walk or hold a coherent conversation…and I was fine??? My father found me one day on the couch close to unresponsive, he thought I was dying, he picked me up and rushed me to the ER. there told me, “I don’t know what you are doing here, or what you think I can do for you.”. GI took pity on me, recognized I was an autoimmune mess, as he put it. All the while they were feeding me hospital food with gluten so I got to the point where I could not get out of bed, drink or eat for several days (was on a drip).

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